SURGERY #2: The Aftermath

A photo of a bag of dextrose hanging on an IV pole.

When we last left off, I was fresh out of surgery and my mental state was precarious at best. Read on to discover just how low I sunk… and how high I have risen since!

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SURGERY #2: Pre- and Post-Op

An operating theatre with surgeons performing surgery on a patient. Several medical monitoring machines can also be seen in the room.

I’ve been gone a while, but with good reason! I had emergency surgery at the start of November. It was a whirlwind of a weekend, but I thought I ought to record it – so here’s what happened, Friday to Sunday.

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Hello, Hickman: Insertion + Healing

An empty operating table with several screens surrounding it.

How is it that the words ‘nil by mouth’ manage to trigger the most intense hunger and thirst you’ve ever known? I’m uncomfortably hungry and, consequently, uncomfortably cranky. Every minute seems to stretch on for eternity, but also fly by like a loosed arrow. Time seems to loop back on itself like a Möbius strip, […]

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Another Orbit

A hand grasping a bunch of balloons of varying colours.

Happy birthday to me! If you follow me on Instagram (or Twitter), you’ll have seen that I’m currently in hospital. What a way to spend your 21st birthday, eh? Shackled to an IV pole in the hospital.

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…and getting it back again

A hand, emerging from a body of water, clutching a lit sparkler.

Happy belated World IBD Day! What better time to get back into blogging? If you read my last post, you’ll know that I was in a bad place in the early months of the year. Now? Well, not much has actually changed, honestly. I’m still experiencing the same symptoms as ever. Infliximab might as well be saline for all the good it’s done me, after six months/five infusions. Exam season is upon us, stress is oozing out of my every pore, and I have an MRI booked for June because my bloods aren’t showing any kind of improvement. By rights, I ought to be feeling as terrible as I did in February. But now things feel different, and I’m in a better position to explain exactly what was going on in my head then (and now!). I want to document everything – the good and the bad – and that starts with explaining why I’ve been so silent these last few months.

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On Losing Hope

An image of a girl sitting at the edge of a cliff, staring into the valley below. Photo by Casey Horner of Unsplash.

This is probably the darkest – and most honest – post I’ve written in a while. Content warning for depression and mention of death, and my apologies in advance for the florid turns of phrase I use to describe abstract concepts. I’ve been quiet lately. Christmas came and went – I had a beautiful, rejuvenating […]

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Gastroenterology Appointment: September 2018

Okay, so, here’s the tale from my updates post that I started to write, before realising it was waaaaay too long and it would need its own post. I always think “oh, nothing much happened,” and then I start writing and actually A LOT HAPPENED. But, spoiler: we’re still no further forward than we were […]

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(My) Mental Health and IBD

It’s World IBD Day! It’s Mental Health Awareness Week! I hope both of them are good to you. It’s quite an intersection of ‘awareness days’, isn’t it, considering the mental toll IBD exacts? So there’s no better time to write about when the two collide spectacularly! Here’s my tale…

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Diagnosis

It’s the first day of Crohn’s and Colitis Awareness Week – happy #PurpleFriday to you all, and I hope you’re doing well – or if you’re not, that you’re doing as well as you can be right now. I’m hoping to publish one post per day for the entirety of this week. We’ll see how […]

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Humira Update: 10 weeks in!

It’s Friday! Like every Friday, I’m in a better mood than I have been all week. Today, though, there was an extra spring in my step, because (just like I have every fortnight for the last 10 weeks) I had my Humira shot. And it dawned on me that I’ve gone so long without writing […]

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