SURGERY #2: The Aftermath

A photo of a bag of dextrose hanging on an IV pole.

When we last left off, I was fresh out of surgery and my mental state was precarious at best. Read on to discover just how low I sunk… and how high I have risen since!

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Hello, Hickman: Insertion + Healing

An empty operating table with several screens surrounding it.

How is it that the words ‘nil by mouth’ manage to trigger the most intense hunger and thirst you’ve ever known? I’m uncomfortably hungry and, consequently, uncomfortably cranky. Every minute seems to stretch on for eternity, but also fly by like a loosed arrow. Time seems to loop back on itself like a Möbius strip, […]

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Gastroenterology Appointment: September 2018

Okay, so, here’s the tale from my updates post that I started to write, before realising it was waaaaay too long and it would need its own post. I always think “oh, nothing much happened,” and then I start writing and actually A LOT HAPPENED. But, spoiler: we’re still no further forward than we were […]

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(My) Mental Health and IBD

It’s World IBD Day! It’s Mental Health Awareness Week! I hope both of them are good to you. It’s quite an intersection of ‘awareness days’, isn’t it, considering the mental toll IBD exacts? So there’s no better time to write about when the two collide spectacularly! Here’s my tale…

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2.50am

This is something (almost autobiographical in nature) I wrote in the early morning, after an accident that roused me from sleep. It’s mostly about fear: an attempt to describe it for those lucky enough to not feel it follow them around like I do, and how it feels in those moments when I can’t suppress […]

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Diagnosis

It’s the first day of Crohn’s and Colitis Awareness Week – happy #PurpleFriday to you all, and I hope you’re doing well – or if you’re not, that you’re doing as well as you can be right now. I’m hoping to publish one post per day for the entirety of this week. We’ll see how […]

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Humira Update: 10 weeks in!

It’s Friday! Like every Friday, I’m in a better mood than I have been all week. Today, though, there was an extra spring in my step, because (just like I have every fortnight for the last 10 weeks) I had my Humira shot. And it dawned on me that I’ve gone so long without writing […]

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expectations

I am having quite a hard day. There’s not really any single thing making it hard. I woke up at a fairly normal time, spent my customary hour in the bathroom, and then had my usual post-ablutions snooze. Yes, really, the exhaustion is so real that something as simple as emptying my bowels (wow, talk […]

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exhaustion

Hi. It’s 4pm (at the time of writing, at least), and honestly, I am knackered. This is not at all unusual. I typically have a 2-to-3 hour nap most days, because I am just so wiped out all the time. And I don’t even do anything! Today I went to one lecture, came home, ate […]

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